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Former Wilmington girl unable to walk or talk, disease unknown to doctors

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WILMINGTON, NC (WWAY) -- A ten year-old girl, once an active soccer player in Wilmington, is now confined to a wheel chair, and doctors cannot figure out what is wrong with her.

Brianna Skriver, a former Ogden Elementary School student, is now one of only 100 people admitted to a national program for undiagnosed diseases. Her regression started around age five, when Brianna played soccer for Cape Fear. Her mother, Tammy Skriver noticed she was having a hard time skipping and her run looked different.

Five years later and now living in Central Florida, after numerous tests and hospital visits, Brianna cannot walk and is fed through a tube.

“She gets frustrated very easy because of course she knows she used to be able to run around and play and she can't do any of that now,” Tammy Skriver says. “It's been a struggle. I'm a single parent.”

Tammy says doctors with the National Institutes of Health are now working to help figure out what exactly Brianna has and hopefully give her disease a name.

If you are interested in helping Brianna, you can visit her Facebook page, ‘Friends of Brianna.’
You can donate to help pay for her medical bill at any Wells Fargo Bank. Just say you want to donate to ‘Friends of Brianna Inc.’

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briana skriver

The Keshe Foundation in Belgium has some success with MS, as I understand.

My niece has JM (Juvenile

My niece has JM (Juvenile Myositis) This little girls symptoms are very similar. It took a while for them to diagnose my niece. I hope they find a cure or at least a treatment for this little girl.

severe MS

My daughter had some of the same symptoms at age 10 and it was severe MS.

Please help Brianna

This little girl lived next door to me before she moved back to Florida. I watched her go from a little princess running around her back yard to the condition that she is in today. Her mother, Tammy has been all over to many doctors searching for answers and has yet to find someone who can diagnosis Brianna. My heart breaks for Brianna. My daughter would sit with her and help her write her ABC's and then her disease progressed so far that she couldn't hold a pencil, walk, talk and now cannot swallow and is fed by a feeding tube. Here is hoping that there is someone out there, doctors, nurses who know or know someone who may be able to help diagnosis her. There was another little girl who was helped with a treatment which is not covered by insurance and Tammy is hoping that this may help get her little girl back. The treatment is expensive, but as a parent, you will try to pull out all strings to get the help her child needs and deserves. Please spread the word!

Please Help Brianna

How can one email Tammy with some infomation of someone who might be able to help Brianna? Thanks.
U

Hello, My niece went through

Hello,

My niece went through the same symptoms and was eventually diagnosed by a team of special doctors with Juvenile Myositis also known as JM. have the Dr.'s tried testing her for this?