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Benefit to help 10-year-old in fight against rare disease

Three years ago a little girl with the world at her feet was diagnosed with a rare genetic disease with no cure. Now 10-year-old Ellie White hopes to build awareness and help others.

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I hope this goes national.

Wolfram syndrome is so rare. The only hope is national coverage. Ellie already is going blind and deaf as her nervous system deteriorates. Thanks for the coverage.
Ellie's Grandma Cookie